General Resources on Experiments on Humans

Web Pages and Databases on Bioethics and Human Experimentation

Government Agencies

• National Bioethics Advisory Commission
  See also
  • Contacting the National Bioethics Advisory Commission by Cheryl Welsh, from Mind Control Forum, for information about NBAC and Citizens Against Human Right Abuse, for "stopping nonconsensual human experimentation using electromagnetic and behavioral technologies."
    See also the C.A.H.R.A.'s coverage of NBAC's response to their requests.
• Human Subject Protections Office of Human Subjects Research, National Institute of Health
• Office for Protection from Research Risks (OPPR), NIH
• Bioethics Special Interest Group from the National Institutes of Health

Other Webpages

• MEDWEB Bioethics Page
• Human subjects/participants and research ethics from the University of Wales, Bangor
• University of Buffalo Bioethics Page
• Bioethics Online Service, Medical College of Wisconsin
• Núcleo Interinstitucional de Bioética from the Hospital de Clinicas de Porto Alegre and the Universidade Federal do Rio Grande do Sul, Brazil. Maintained by José Roberto Goldim. See also his Ética Aplicada à Pesquisa em Saúde page.
• Lab of Bioethics Waseda University, Japan (English Version). See also their splash screen, with a link to a page of other bioethics sites.

Background on Bioethics and Human Experimentation

• Bioethics: an Introduction from University of Pennsylvania Center for Bioethics; contains information from Encarta and links

Policies and Other Official Documents on Human Experimentation

Policies, Codes, and Guidelines

United States

• Protection of Human Subjects Title 45 Code of Federal Regulations Part 46
• The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research; April 18, 1979
• Human Research Subject Protections Act of 1997 by Senator John Glenn. Page from Mind Control Forum; contains text of the bill, letters and testimony in favor of the bill.
• Guidelines for the Conduct of Research Involving Human Subjects at the National Institutes of Health; Revised 3/2/95
• Research Involving Individuals with Questionable Capacity to Consent: Ethical Issues and Practical Considerations for Institutional Review Boards (IRBs) Expert Panel Report to the National Institutes of Health, from the Bioethics Interest Group
• Informed Consent NIH Office of Human Subjects Research Information Sheet #6; Revised 10/93
• Research Involving Children NIH Office of Human Subject Research Information Sheet #10 Revised 10/93 Medical College of Wisconsin
• Guidelines for Adolescent Health Research A Position Paper of the Society for Adolescent Medicine
• On Being A Scientist: Responsible Conduct in Research from the National Academy of Sciences. This pamphlet deals primarily with deception and other dishonest practices in the physical sciences, but it does contain observations on the relationship between scientists and society.

International

• The Nuremberg Code
• Declaration of Helsinki World Medical Assembly
• Code of Conduct for Research Involving Humans from the Center for Applied Ethics, University of British Columbia
• National Health and Medical Research Council (Australia) Statement on Human Experimentation

Other Official Documents and Statements

• Informed Consent in Research involving Human Participants NIH GUIDE, Volume 25, Number 32, September 27, 1996. RFA: OD-97-001; a guide to grants for research
• Research on Clinical Bioethical Dilemmas NIH Guide, Volume 23, No. 12 - March 25, 1994; a guide to grants for research
• Frequently Asked Questions about the Office of Protection from Research Risks
• Documents of Human Experimentation maintained by Steven Hale

Articles, Editorials, etc. about Human Experimentation

• Law and the Physician: A Practical Guide by Edward P. Richards and Katharine C. Rathbun
• The Dilemmas of Experimenting on People by Jonathan D. Moreno from Technology Review Online
• The Biological Manipulation of the Human Population
• Nonconsensual Brainwave and Personality Studies by the U.S. Government by Cheryl Welsh, from the Citizens Against Human Rights Abuse web page
• Ethics by Bob Hale
• The Consent of the Lambs editorial about FDA regulations permitting experimentation without consent of subject
• Mass Murderers in White Coats (From Harvard to Buchenwald: A Chronology of Psychiatry and Eugenics by Lenny Lapon
• Doing Harm: Research on the Mentally Ill; Still no solution in the struggle on safeguards by Dolores Kong, Boston Globe, 11/18/98
• changing the ed of scientists from an AAAS Forum
• Maryland statute group part of growing trend: Guinea pigs don't get to say 'no'
  High-risk, painful research inflicted on 'decisionally incapacitated' people: 'At the mercy of overzealous researchers'
  Easing of FDA rules may have led to deaths: Media hasn't put 2 and 2 together, says Steve Drake
  Three articles by Mike Ervin in Ragged Edge Magazine (an online magazine from Disability Rights Nation)

Medical Databases

• Internet Grateful Med Search the National Library of Medicine's databases

Bibliography

• Select Bibliography of Print Sources by Steven Hale

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  Last update: February 2, 1998.