Preliminary Bibliography on Human Experimentation: Other Experiments

Books and Articles

Willowbrook State School

Beller, F. K. [History of the Willowbrook State School or when is entitled the human experimentation]. Med Welt. 1973 Jan 12;24(2):79-80.

* Krugman, Saul. Infectious diseases of children and adults. Mosby, 1973.

Rivera, Geraldo. Willowbrook; a report on how it is and why it doesn't have to be that way. New York, Random House 1972. (Deals more with general abuses than with the hepatitis experiments performed there.)

Rothman, David J. "Were Tuskegee & Willowbrook 'studies in nature'?" Hastings Cent Rep | 1982 Apr | v. 12 | (2) | p. 5-7.

* Rothman, David J. and Sheila M. The Willowbrook Wars. New York : Harper & Row, 1984.

General Studies on Children and Pregnant Women as Research Subjects

Rogers AS, D'Angelo L, Futterman D. Guidelines for adolescent participation in research: current realities and possible resolutions. IRB: A Review of Human Subjects Research 1994;16:1計;6

Grodin MA, Alpert JJ. Children as participants in medical research. Ped Clinics NA 1988;35:1389計;401.

Glantz LH. The law of human experimentation with children. In: Grodin MA, Glanz LH, eds. Children as Research Subjects: Science, Ethics, and Law. New York: Oxford University Press, 1994

English A, Matthews M, Palamountain C, et al. State minor consent statutes: a summary. San Francisco; National Center for Youth Law, 1995.

Leikin SL. An ethical issue in biomedical research: the involvement of minors in informed and third part consent. Clin Res 1983;31:34計;40

Weithorn LA. Childrens capacities to decide about participation in research. IRB: A Review of Human Subjects Research 1983;5:1計;5.

Weithorn LA, Scherer DG. Children's involvement in research participation decisions: psychological considerations. In: Grodin MA, Glanz LH, eds. Children as Research Subjects: Science, Ethics, and Law. New York: Oxford University Press, 1994.

Susman EJ, Lorah DD, Fletcher JC. Participation in biomedical research: the consent process as viewed by children, adolescents, young adults, and physicians. J Ped 1992;547計;52.

Thompson RA. Vulnerability in research: a developmental perspective on research risk. Child Development 1980;61:1計;16.

Levine RJ. Adolescents as research subjects without permission of their parents or guardians: ethical considerations. J Adol Health 1995;17(5):286計;96.

Mastrionni AC, Faden R, Federman D, eds. Women and health research: ethical and legal issues of including women in clinical studies, volume I. Washington: Institute of Medicine, National Academy Press, 1994.

Jenkins R, Parron D. Guidelines for adolescent health research: issues of race and class. J Adol Health 1995;17(5):313計;21.

Mammel KA, Kaplan DW. Research consent by adolescent minors and institutional review boards. J Adol Health 1995;17(5):322計;9.

Janofsky J, Starfield B. Assessment of risk in research on children. J Pediatr 1981;89:842計;46.

Lederer SE, Grodin MA. Historical overview: Pediatric experimentation. In: Grodin MA, Glanz LH, eds. Children as Research Subjects: Science, Ethics, and Law. New York: Oxford University Press, 1994.

Experiments on Prisoners

Hornblum, Allen M. Acres of Skin : Human Experiments at Holmesburg Prison: A True Story of Abuse and Exploitation in the Name of Medical Science. 1998.

"Prison Malaria: Convicts expose themselves to disease so doctors can study it." Life, June 4, 1945, 43-46.

Miscellaneous Experiments

Cole, Leonard. Clouds of Secrecy : The Army's Germ-Warfare Tests over Populated Areas. 1989.

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Last update: January 29, 1999.